Trisomy 18 (Edwards’ syndrome) - where babies have an extra copy of chromosome 18 - is the second most common type of trisomy syndrome, and typically comes with a bleak prognosis.
Many parents may choose not to proceed with a pregnancy after a trisomy 18 diagnosis, but an increasing number want to meet their baby. In addition, some babies are not diagnosed until the neonatal period. These parents may therefore require a very special kind of support from midwives and other healthcare professionals.
This presentation will share my experiences as the mum of a child with Trisomy 18, and some of the lessons learned through both our journey and my role as a trustee of SOFT UK supporting other parents with a Trisomy 18 or 13 diagnosis. It is hoped that these insights can both raise awareness of these syndromes and help to identify how midwives can support parents in this situation.